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My Struggle
A few years ago I was diagnosed with Lupus,
fibromyalgia, and a few other lesser conditions.
At first, I really didn't think much of it. After
all, I had never known anything about the disease
before. So, this begins my time of research.
When I Realized I Needed to Rally!
At first it was just some random pain....nothing
too big. Well, nothing that a good pain killer
couldn't fix. Then it quickly snowballed into
much more. It has gotten to the point where some
days, it is hard just to wake up and get out of
bed. Like I start my days with only a half of a
spoon! Then some days I would be okay. A good
day means that I will be able to at least pour a
bowl of cereal for the kids and get them ready for
the day. Then we just play the rest of the day by
ear. It always depends on how much my fatigue
sets in that day. A bad day means that I sleep
most of the day just to try to not feel any of the
pain. I cry and then try to stop crying because
it just makes the pain feel that much worse......
That is when I began to wonder.... wonder why
me.....what am I supposed to do now.....what is
going to happen to me...to my husband..to my
children? I need to find some sort of control in
this situation. Now is when I am like a
mad-man.... I need to know everything about this
disease...and to this day, I spend at least one
hour everyday devoted to researching this disease
and spreading awareness anywhere I can.
What Worked For Me
For me, I would have to say that I just needed to
find a way to surrender everything to God. I have
always had faith but now having faith meant
something different. I had to realize that
everyone has a purpose and just maybe mine is to
live with this disease and show people that in the
times of utter dispair, you can and will get
through it as long as you cling to God. I am not
saying that I just stick to prayer..... Although I
spend much time in prayer, I also see my doctors,
take my medication and do all I can to keep myself
rested and stress free. Okay... now I know that
you are all laughing. NO I am not crazy! I have
three children and that alone can cause enough
stress on a daily basis to give someone a
heartattack. But I am daily learning ways to
reduce stress and leave all of my worries at the
foot of the cross.
The Progress I've made
I am not sure that progress is the right word.
There is no telling what Lupus is going to do to
your body.... I think that the progress you make
is how you deal with the day to day things. For
me my good days have now gone from just making
breakfast to spending the day laughing and playing
with my beautiful children. My son starts Sunday
school soon and I plan to be there everyday with
him!
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